Friday, February 22, 2002

A Little Update

Kyla is handling the treatment well. She feels tired especially in the morning and goes home and usually sleeps for a couple of hours while Jed is still there. Then she feels more capable of being up with Emma in the afternoon. Her blood count is still normal.

Friday, February 15, 2002

Count Normal

Kyla's blood count is back up well in to the normal range. The doctors were surprised because she actually should be having a decline from the medications she is taking. Praise God! Prayers do wonders.

Thursday, February 7, 2002

The Great Wind Storm

There was a horrific wind storm today which took out much of the power and downed trees all over the place. Kyla and Jed happened to be one of the few that retained their power. Of course, needless to say, ours was out....seems to be a pattern. A large tree limb was blown through the back window of our new car and the pickup starter decided to go out in town at Dave's office so both cars were sadly out of commission.

There are just some days where you question God.

Wednesday, February 6, 2002

First Day

Kyla has her first radiation treatment this morning and a standard time is picked for each day. It will be 8:00 am each day and I will take her since it so hard to get Emma up and going that early every day especially when it is a 20 minute drive for a 5 minute treatment and then back again.

Tuesday, February 5, 2002


Kyla meets with Dr. Monticelli, her oncologist, who will oversee her chemo treatments. The first radiation treatment will begin tomorrow.

Monday, February 4, 2002

Too Low

The count is still slightly low but she can still participate in the protocol. It only means the UCSF can't use the data in their research. So the plan now is to go ahead with 33 treatments of radiation along with Temodar (chemo) and cis-retinoic acid. After the radiation treatments are completed the Temodar will drop to 5 days a month.

Friday, February 1, 2002

Blood Work

Kyla has her blood drawn and faxed the results to Dr. Chang in San Francisco along with her protocol. The results are that her white blood count is just a couple of points too low to participate. However, a side effect from the Tegratol for seizures is that it causes a low blood count. So she will have it drawn again on Monday to see if there is a difference.