Kyla is doing great. She is awake and no signs of swelling or bruising which sometimes happens with a craniotomy. She is able to stay awake for much longer periods and talk with her visitors. She will have an MRI today to determine if the entire visible tumor was removed. Dr. Kokkino broke the bad news that the preliminary findings are the tumor is a Glioblastoma Multiforme, which is the most aggressive form. A second opinion will be done by another pathologist at OHSU to confirm but the same opinion was given before surgery by one of the top tumor specialists in the country, Dr. Jerome Posner, who is at Sloan Kettering Memorial Cancer Center in New York. He happens to be the brother of my boss. I am beginning to see how small a world this really is and the connections that we all have. My boss is famous for his research on the brain, his brother just happens to be famous for his brain tumor work. Wow!
They will be moving her out of ICU to a regular room on the neurosurgery floor tonight. We love you Kyla.
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May 3, 1978 -- August 13, 2006
Forget not that the earth delights to feel your bare feet
and the winds long to play with your hair.
~ Kahlil Gibran
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Don't Panic! There isn't a disease or other malady that God can't heal or take you through to a glorious conclusion!
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One day at a time! You only have the resources for one day at a time. God will meet you in the morning with a freshly whipped batch of grace for that day, but don't try to take on tomorrow's trials with today's grace.
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Know the Lord will fight this battle for you. You want to be faithful to His leading but the final word will be what He does, not what you do.
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Don't be heroic and avoid the help of other people. This is a time when others will be there for you........and sometimes the most unlikely and unexpected kind of people.
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Know that you are loved and prayed for by not only family, loved ones and friends, but by many others that have never had the joy of knowing you.
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Have a deep commitment to live.....Embrace life.
~unknown
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Thy journey be auspicious;
may the breeze,
Gentle and soothing, fan thy
cheek; may lakes
All bright with lilycups delight
thine eyes,
The sunbeam's heat be cooled
by shady trees,
The dust beneath thy feet
the pollen be
of lotuses.
~ from Sanskrit play, c.400 A.D.
Kyla was a beautiful young woman who lived life to the fullest. She was diagnosed at 23 with the deadliest form of brain cancer, Glioblastoma Multiforme.
KYLA
If I had a flower for every time I thought of you, I could walk in my garden forever. You will never be forgotten.
*********************************** A rose once grew where all could see,Sheltered beside a garden wall,
And, as the days passed swiftly by,
It spread its branches, straight and tall...
One day, a beam of light shone through a crevice that had opened wide,
The rose bent gently towards its warmth then passed beyond to the other side,
Now, you who deeply feel its loss, be comforted,
The rose blooms there,
Its beauty even greater now,
Nurtured by God's own loving care.
Kyla Nagel Cancer Fund
The Kyla Nagel Cancer Fund trust account was established to help in the research efforts to fight brain cancer. Kyla loved UCSF and appreciated all that was done for her to help fight this disease. If you would like to honor Kyla's name, you can donate to UCSF or the National Brain Tumor Foundation in the following way.
Donations can also be made in Kyla's name directly to UCSF using the following electronic link:
UCSF:
Mailing address:
UCSF Comprehensive Cancer Center
UCSF Box 0248
San Francisco, CA 94143-0248
By Phone -- Call 415.502.6225 to speak to a member of the fundraising staff.
OR
National Brain Tumor Foundation:
Mailing address:
National Brain Tumor Foundation
22 Battery Street, Suite 612
San Francisco, CA 94111-5520
Donations can also be made in Kyla's name directly to UCSF using the following electronic link:
UCSF:
Mailing address:
UCSF Comprehensive Cancer Center
UCSF Box 0248
San Francisco, CA 94143-0248
By Phone -- Call 415.502.6225 to speak to a member of the fundraising staff.
OR
National Brain Tumor Foundation:
Mailing address:
National Brain Tumor Foundation
22 Battery Street, Suite 612
San Francisco, CA 94111-5520
Helpful Links
- A Primer on Brain Tumors [5th edition]
- American Brain Tumor Association
- Atlas of the Whole Brain
- Cancer Websites from SPOHNC
- Cleveland Clinic Foundation
- Clinical Trials/Treatments for Brain Tumors
- Danielle Drumke
- Great Cancer Information and Support site in the U.K.
- Health6.com
- Marg's Journey
- Massachusetts General Hospital
- MD Anderson Cancer Center (University of Texas)
- Medifocus Guidebook on Glioblastoma
- MGH Brain Tumor Center
- NYU Medical Center
- Pediatric Brain Tumor Foundation
- Prescription Drugs
- Ride for Kids
- South Florida Brain Tumor Association HomePage
- St Jude Children's Hospital
- Steve DePesa's Brain Tumor Guide
- Temodar chemotherapy
- The Brain Tumor Dictionary
- The Brain Tumor Society
- UCSF
- University of Alabama at Birmingham
- University of Southern California
- UVA Cancer Center
- Wake Forest University School of Medicine
- Young Adults Surviving Glioblastoma
My Other Blogs
THINGS TO HOLD ON TO
About
- Vonda
- Springfield, Oregon, United States
- Kyla's wish was to help others that may be fighting brain cancer find some sort of hope and help. Please feel free to read about her journey and contact us with any questions you may have. God Bless.
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