Caring for Kyla

Since I wrote last, Kyla has declined fairly rapidly. She is now is in a wheel chair as her left side mobility is affected. She doesn't communicate much...just answers yes and no mostly. But every once in a while she will talk a little. She spends much of her time sleeping, either in the recliner or in bed. I try to keep her out in the house with us during the day even if she does sleep. It just feels better to have her with us. Brian and Charo spend most of the mornings with us and Jill and Lucy, Emma and Byron spend the afternoons. I have been able to get out a couple of time to run an errand or two and that is so great. We now have a hospital bed for Kyla which makes it much easier helping her up and down. She basically can't take care of herself at all now. I shower, dress, and change her. She can still eat but even I have noticed that she is having a little more difficulty each day.

We have had so much company since her move out with us. Her grandfather from Baker, Leroy came to see her, her aunts and uncles, Barb & Rick, Loretta, Kristi and Pat, Gary and Patti, Mike and Linda, & John and Lisa, cousins: Kamisha, Jason, Aaron, Shalon, Schelly, Jordan, Addie Mae, Lexie, Kallista, Molly, Sean, Celina and Marisa all have visited in the past week. Her friend, Teresa comes at least once a week as well as visits from Susan and Alison, Joe and Shari, Dez, and others that I just can't think of now. I read her all of the notes and messages and she feels all the love and support right now and we all thank each of you for your time as well and lovely cards and messages, phone calls and visits. It means more than you know.

Kyla and Emma had a wonderful time in Disneyland. Jill did such a great job taking care of Kyla. Thank you Jill! You are terrific. Our days are spent caring for Kyla and surrounding her with love as she prepares to leave this world. I will try to post again soon.